Epilepsy is measured in events that happen when nobody clinical is present. The seizure count is the outcome that matters, in the clinic and in every trial, and it is recorded by the person who had the seizure or by whoever was in the room.
Paper diaries lose events. People reconstruct a month at the waiting-room door, forget the minor ones, and cannot say afterwards what preceded an episode. The neurologist sees fifteen minutes twice a year and a page of approximate recollection.
In a trial the same weakness becomes an endpoint problem. A diary that undercounts, or that participants abandon after eight weeks, moves the result.
Helpilepsy is an epilepsy app built around the seizure diary, developed by Neuroventis and now part of Cascador/moveUP.
Patients record seizures as they happen, with the detail an epileptologist actually uses — seizure type, duration, and the circumstances around the event. The app carries medication tracking and reminders, and disease education alongside it, so it is useful between events rather than only at the moment of one.
What the patient records reaches the treating neurologist, so the consultation starts from a record rather than from recall.
The same diary runs inside clinical trials. Our eCOA work in epilepsy uses seizure instruments designed per indication, and Helpilepsy is the patient-facing side of that family.
Tell us what you are working on and we will help you get it moving.
